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submitted 5 months ago* (last edited 5 months ago) by Washedupcynic@lemmy.ca to c/asklemmy@lemmy.world

Lemmy, I really would like to hear your opinions on this. I am bipolar. after almost a decade of being misdiagnosed and on medication that made my manic symptoms worse, I found stable employment with good insurance and have been able to find a good psychiatrist. I've been consistently medicated for the past 3 years, and this is the most stable I have been in my entire life.

The office has rolled out the use of an app called MYIO app. My knee jerk reaction was to not be happy about the app, but I managed my emotions, took a breath and vowed to give it a chance. After being sent the link to validate my account, the app would force restart my phone at the last step of activation. (I have my phone locked down pretty tight, and lots of google shit, and data sharing is disabled, so I'm thinking that might be the cause. My phone is also like 4-5 years old, so that could also be the cause.)

Luckily I was able to complete the steps on PC and activate that way. Once I was in the account there were standard forms to sign, like the HIPAA release. There was also a form there requesting I consent to the use of AI. Hell to the NO. That's a no for me dawg.jpg.

I'm really emotional and not thinking rationally. I am hoping for the opinions of cooler heads.

If my doctor refuses to let me be a patient if I don't consent to AI, what should I do? What would you do? Agree even though this is a major line in the sand for me, or consent to keep a provider I have a rapport with, who knows me well enough to know when my meds need adjusting?

EDIT: This is the text of the AI agreement. As part of their ongoing commitment to provide the best possible service, your provider has opted to use an artificial intelligence note-taking tool that assists in generating clinical documentation based on your sessions. This allows for more time and focus to be spent on our interactions instead of taking time to jot down notes or trying to remember all the important details. A temporary recording and transcript or summary of the conversation may be created and used to generate the clinical note for that session. Your provider then reviews the content of that note to ensure its accuracy and completeness. After the note has been created, the recording and transcript are automatically deleted.

This artificial intelligence tool prioritizes the privacy and confidentiality of your personal health information. Your session information is strictly used for the purpose of your ongoing medical care. Your information is subject to strict data privacy regulations and is always secured and encrypted. Stringent business associate agreements ensure data privacy and HIPAA compliance.

Edit 2: I just wanted to say that I appreciate everyone here that commented. For the most part everyone brought up valid points, and helped me see things I had not considered. I emailed my doctor and let them know I did not want to agree to the use of AI. I let them know that I was cool with transcription software being used as long as it was installed locally on their machines, but I did not want a third party online app having access to recorded sessions for the purposes of transcription. They didn't take issue with it.

Thank you everyone!

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[-] DomeGuy@lemmy.world 3 points 5 months ago

No, I would not keep seeing a doctor who demanded I consent to AI to continue being a patient.

Just as I'd stop seeing a doctor who said they now want to ban all vaccines. Or who demands that patients go to their specific church. Or requires that we give blood.

A doctor who asks to use it, however, is entirely tolerable. I don't mind if my doctor has an LLM look at my MRI scan to help find precancerous growths, and neither should you. But "talk to this chatbot instead of a triage nurse" is an unacceptable level of care.

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[-] ipkpjersi@lemmy.ml 3 points 5 months ago

Yes, because there aren't really going to be any more doctors that aren't using AI. AI is widespread and unavoidable. It's definitely unfortunate but it's true.

I have literally seen walk-in doctors have ChatGPT on their screen, they are literally using it to look up symptoms too.

[-] Tollana1234567@lemmy.today 3 points 5 months ago* (last edited 5 months ago)

i wonder if they hallucinate notes post-appointment, i notice that there have been complaints against certain providers that the "doctors" did other examinations that they dint do in-person and it appeared on their records.

[-] RodgeGrabTheCat@sh.itjust.works 2 points 5 months ago

Yes I would but only if I can be sure the LLM wasn't listening. Collection of personal information requires consent in Canada and I wouldn't be giving consent.

I don't believe for one second the conversations aren't uploaded to a datacenter nor that those transcripts will be deleted.

[-] Tollana1234567@lemmy.today 2 points 5 months ago* (last edited 5 months ago)

i would probably look at review sites, to see if happened to anyone else, if they have private pratice, they would have entry and comment on those sites. i would look for a 2nd opinion at this point, if they are going to defer you to AI chatbox.

[-] swelter_spark@reddthat.com 2 points 5 months ago

My dentist started using this. Not the same service, but automatic AI-based visit recording, transcription & record-keeping. She's experienced with a difficult issue I have, so I'm staying with her for now but this is definitely a minus.

[-] Apytele@sh.itjust.works 2 points 5 months ago* (last edited 5 months ago)

Unless it's a private practice, it's probably not the psychiatrist that wants to use that tool, it's probably an initiative on the part of the larger organization. There's good odds that the practitioner themselves is even against it themselves. That said, this sounds like one of the lower risk use-cases; what you're describing is more of a souped up dictation software more than it is truly generative AI.

TLDR; don't let this stress you. Do what feels right for your own care. And, ultimately, keep your own records and notes about your own symptoms day to day vs what treatments you're trying at any given time. Also do your best to educate yourself on what the meds are supposed to be doing, especially what symptoms (not disorders) they're supposed to be treating. Taking the initiative to track your own care in detail is what's really going to get you the best results anyway.

[-] daannii@lemmy.world 2 points 5 months ago

I just had a visit Friday and they made me sign a form agreeing to it.

I do not like this one bit.

[-] sudoer777@lemmy.ml 2 points 5 months ago

Imagine charging $300 then outsourcing your note taking to a machine that barely knows shit and has nothing to lose

[-] lucg@lemmy.world 2 points 5 months ago

I let them know that I was cool with transcription software being used as long as it was installed locally on their machines, but I did not want a third party online app having access to recorded sessions for the purposes of transcription. They didn't take issue with it.

A cynical part in me thinks they'll just have it "locally installed" in the same way that Firefox is locally installed (doesn't mean the meaningful part runs locally), and that no third party has access because the servers just don't show stuff from other tenants even though the server operator could theoretically see all. It's not like the medical people necessarily know better if their vendor answered the concerns in this manner

One way to find out for lay people might be to turn off WiFi, or disconnect the network cable, and see if it still works — in case you're in a position where the doc might seem willing to do such a 30-second experiment (if they haven't already tried this in the past themselves). Doesn't mean it doesn't get uploaded when internet is reconnected (e.g. for backups), but that is much harder to check, and if the vendor already made sure the processing is all local then it's probably okay and not being sold off as training or insurance data

Kudos for reading the terms of service and raising your concerns with them! So long as some of us keep doing that, the privacy of people who don't know about this sort of thing is also better-protected. Thank you :)

[-] ExLisper@lemmy.curiana.net 1 points 5 months ago

It's just a tool, it doesn't really matter. A good doctor will not blindly trust AI only because his employer allowed him to use it. If you notice the services get worse after that then change the provider. Most likely you will not be able to find any puritan healthcare provider that bans the use of all AI. There is a way to use those tools responsibly and you just have to look for doctors that know how to do it. Looking only for doctors that don't use any AI will just limit your choices and make the possibility of getting shitty care greater.

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this post was submitted on 04 Apr 2026
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