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Daily Discussion Thread: 🦁🍏 Tuesday, October 22nd, 2024 (aussie.zone)

submitted 1 month ago by TheWitchofThornbury@aussie.zone to c/melbourne@aussie.zone

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[–] melbaboutown@aussie.zone 8 points 1 month ago* (last edited 1 month ago) (2 children)

I was wondering if anyone here has had experience with Independent Living options/renting through the NDIS and wouldn’t mind talking about it?

Group homes and supported living are not appropriate for me. I prefer to stay as independent as possible, need to live alone and choose my own support workers - so I’m very wary about what I’d be getting into especially if my plan ever changed. Hence ILO.

I don’t really trust the NDIS to be honest. But my disability is degenerative, current housing is substandard and dangerous, and despite trying to transfer for years it is just not likely to happen.

[–] dumblederp@aussie.zone 4 points 1 month ago (1 children)

We're probably too small a group. I think there's an /r/NDIS which might have a more experienced audience.

[–] melbaboutown@aussie.zone 3 points 1 month ago

Thanks. I just tended to keep my personal info more to myself in the Other Place :/

[–] Nath@aussie.zone 3 points 1 month ago (1 children)

NDIS is just a government programme that funds people with disabilities. Don't think of it as a company or single entity. There are many providers that work within the framework of the NDIS, and your experience within the program will depend 100% on the provider(s) you work with. The bad reputation the programme has is because there are many cowboys and awful operators in there. The government is trying to clean it up, though.

I don't know how it works first-hand, but people using the scheme generally have someone handling their plan and being their advocate. I have a friend who fulfils this role for her daughter, and it's basically a part-time job to do it yourself. Most people pay someone to manage their plans.

I'm sorry that I don't have anything specific to suggest, but NDIS is overall a thing that is good. Don't be swayed by the bad press thrown at it any more than you'd blame Medicare if you had a bad doctor experience. The programme is expensive, and so of course there are lots of people who want to get rid of it.

[–] melbaboutown@aussie.zone 1 points 1 month ago* (last edited 1 month ago)

I know, thanks. I actually am with the NDIS and am cautious due to my own experiences.

I just had specific questions around ILO, as I know there is at least one other poster here on NDIS who also seems to live independently.

But I didn’t want to seem rude or put them on the spot by questioning them directly about their arrangement. Hence the very openly phrased question.