this post was submitted on 07 Dec 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] Ephera@lemmy.ml 6 points 1 week ago (1 children)

What I'm saying is that I have chronic fatigue+pain and I'd be on a solid 9 out of 10 on the pain scale for the whole of Monday. I would be genuinely worried that I'd pass out from pain at some point. I cannot even process what it would do to me, to try to also come in on Tuesday. That's why I completely misjudged how difficult this would be for her, even though I was aware that she's healthy. I just assumed even healthy people would run out of steam, if they're doing things multiple days in a row.

If your levels of health allow you to work that job, then ~~check your goddamn privilege~~ honestly good for you.

[–] MutilationWave@lemmy.world 2 points 1 week ago

Hey, I'm sorry.

I was aware of what community I'm in but I assumed you were describing a healthy person. Which ended up being true but I didn't take it from your perspective.

I'm generally physically healthy but not mentally. I'm on several medications for my mental health. I have to bring myself to what feels like death to me, from exhaustion some weeks, some are not so bad.