this post was submitted on 06 Mar 2025
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CF is horrible. I had no idea that there was a new treatment and that it was so effective.
Has a double lung transplant in 2007. My CF doctor told me today he doesn’t even really refer patients to transplant centers anymore because of the newest drugs.
It really is amazing. When I had my transplant , the post surgery rehab was walking on treadmills and light weights. My transplant rehab office was 60+ year olds and 20 year olds with CF, nothing really in between.
It’s awesome because the extra effect is that the lungs that CF patients would get can no goto another patient that needs them.