this post was submitted on 14 Aug 2023
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I'm just curious about this. As someone with a chronic illness, I pretty much never hear anyone talk about things related to the sorts of difficulties and discrimination I and others might face within society. I'm not aware of companies or governments doing anything special to bring awareness on the same scale of say, pride month for instance. In fact certain aspects of accessibility were only normalized during the pandemic when healthy people needed them and now they're being gradually rescinded now that they don't. It's annoying for those who've come to prefer those accommodations. It's cruel for those who rely on them.

And just to be clear, I'm not suggesting this is an either or sort of thing. I'm just wondering why it's not a that and this sort of thing. It's possible I'm not considering the whole picture here, and I don't mean for this to be controversial.

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[–] jackoneill@lemmy.world 25 points 1 year ago (2 children)

Fellow cripple, chronic pain sufferer who struggles to function in society. It sucks. We get no help. Everybody around us gets help but us

[–] stevehobbes@lemmy.world 11 points 1 year ago* (last edited 1 year ago) (2 children)

That sounds pretty bitter, and a little misguided.

I’m sure it sucks, but I bet I could find plenty of marginalized groups that get less support per capita.

The ADA has changed construction across the US for decades. Any substantial renovation involves bringing preexisting structures up to code. That is not nothing. I’m sure it’s hundreds of billions of dollars nationally in accommodations.

The ADA has made you a protected class for decades longer than LGBTQ folks.

It might be slower than you want, and I’m sure it’s still not enough, but it is far more than you’re suggesting. And probably receives more money than any other marginalized group in terms of dollars spent on accommodations.

[–] Drusas@kbin.social 11 points 1 year ago (1 children)

While none of your points are necessarily wrong (although they are mostly vague), none of them do anything to help a disabled person right now.

[–] stevehobbes@lemmy.world 10 points 1 year ago

Everything about this post is vague. Everything about your post is vague. What disability? What help do they need right now?

We have TTY services for the deaf, you can text most places or email with them now instead of calling.

Everything constructed in the last 20 years has ramps, elevators and plenty of handicap parking.

NYC has been spending billions retrofitting elevators into 200 year old subway stations.

Things are being done - but mobility is an infrastructure problem that works on infrastructure timescales.

You can make gay marriage legal overnight, you can’t magically retrofit buildings overnight. You can’t hire 10 million more special needs teachers. You have to train them.

Which is another great area - look at how much more we do for special needs kids in school - they get aides in integrated classes, and far more 1x1 attention than any other kid in a public school.

I am not saying it’s enough, or that anyone is done, but this “no one sees us and no one is helping” thing doesn’t actually ring true to me.

[–] MossBear@lemmy.world 5 points 1 year ago (1 children)

What's your experience with chronic illness?

[–] stevehobbes@lemmy.world 7 points 1 year ago

That it’s better to not have one than to have one.

Which chronic illness are we talking about? There’s a lot and have wildly different societal needs.

[–] MossBear@lemmy.world 4 points 1 year ago

You speak the truth. And Jack O'Neill is awesome (Two l's!).