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submitted 4 days ago* (last edited 4 days ago) by Fossy@programming.dev to c/science@lemmy.world
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[-] BartyDeCanter@piefed.social 1 points 3 days ago

N2 here. It was mild all my life, down at the "quirky" level, so I wasn't diagnosed. Everyone who had ever lived with me knew something was weird with how much I slept, but not enough to be a concern.

Then a year and a half ago it ramped up to devastating over the course of a couple weeks. I lost my job but luckily was able to find a new, less stressful one. After cycling through multiple sleep doctors and multiple tests that take months to get, I'm finally on two daytime meds. They help, but nowhere near enough. I have another in December and then hopefully I can get on Xyrem and/or oveporexton.

Anyway, I just want to say I get it, it sucks how much of your life it takes away, and I hope that better treatments are found for all of us.

this post was submitted on 11 Sep 2026
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