He died 4 years back, so no. ALS is usually about 2 years from diagnosis, and he made it a bit past that, but not much.
Once the ridiculous amounts of nonsense paperwork was run through (during which time my dad lost the use of his arm, speech was one of the first things to go), he got plenty of support. But getting there is the nightmare in my opinion. They started out trying to give him like 15% disability - which is insane, ALS is terminal and is always a 100%.
But thanks for the link! It looks like there's some stuff there that applies to my family in terms of benefits, so going to do some digging.
If I can, I buy direct downloads.
If I can't do that, I'll buy the CD (as long as its direct or a small label).
If I can't, or its one of the big labels, I'll find it elsewhere. I'd rather buy merch to support the artist directly than buy anything that goes through the big labels.