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this post was submitted on 22 Sep 2026
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People said that about me. I had developmental issues, by far not as bad as the child you are referring to, but bad enough to make doctors believe I had epilepsy. Potentially a progressive form.
Someone I knew in school had muscular dystrophy. My developmental difficulties persisted into my young teens and the one thing I remember him saying to me was "the Nazis would have killed us both." Where he is right now, I could not know. He might not be alive anymore.
People would have said we were suffering, or be under some kind of pain, despite our lives being full of worthwhile moments. Adults tend to say things that make reality feel comprehensible. A defenceless child is the victim of the narcissistic adult who is unable think beyond their feelings and perception of reality. The narcissistic need to feel in control and competent borne from a society where it's everyone against everyone.
It feels like a punch in the face. People making a show of the suffering or what they perceive to be suffering while at the same time not advocating for a morsel of assistance to disabled people. In fact, they would maintain that killing the disabled person is sufficient assistance. Inequality in healthcare, lacking support networks, ableism, all swept under the rug while crying "look at the suffering!"
You are dramatically downplaying the suffering of this baby though.
He was in constant agony. Constantly drowning in his own mucus. Severe seizures that would not respond to treatment. He was functionally blind, and also could barely move his own body due to the severe cerebral palsy.
Have you ever been close to drowning or waterboarded? It's one of the worst feelings imaginable. It's extremely painful to not be able to breathe, and you have a massive wave of primal fear from the feeling of death. And this baby was in that 24/7. He was also in severe pain because of the constant epileptic seizures. And trapped in a body that he couldn't even move.
They didn't just up and say "fuck it, kill him". They tried for nearly two years, since birth, to do everything they could to medically help him. Nothing worked. The baby was living in hell. Constant extreme pain.
I feel for his parents. I can guarantee that it was a horrific decision they had to make. But at the end of the day, letting the baby they love continue to exist in pure constant agony with no hope of ever alleviating it, is far less humane.
Well, we'll see how history will play out.