Hi all! I'm here on behalf of my partner of 26 years, who was dx'd with Alzheimer's (plus a big serving of depression and anxiety). She's been a longterm disability rights advocate (seizures, hard enough of hearing that she signs—or used to, has been socially withdrawing, and memory + Alzheimer's… well, you know). When she got the official dx, I joked to her, "well, you were always proud of being Disabled—now you've got the Great Mother of all disabilities."

In a nutshell, a couple of drivers took me out on a bicycle 2/26/14, with a broken neck and back. The bones healed but I have some kind of undiagnosed soft tissue damage that makes it impossible for me to hold posture for more than around one hour. It doesn't matter if I'm sitting or standing. If I push past this, I am a useless zombie. It will also take me somewhere between a few days to a month to be able to sleep for more than an hour or two after pushing myself to stay upright for too long.

Naturally doctors in the US don't have a clue what to do with me and neither does disability court. I am stuck living as a burden to my parents waiting for them to die so that I can take up occupation in a ditch somewhere as is the American way.

Hello everyone. I'm a 37(m) with Ehlers-Danlos Syndrome and too many cats.