this post was submitted on 14 Jun 2023
13 points (100.0% liked)

Neurodivergence

3249 readers
1 users here now

All things neurodivergent and relating to the broader neurodivergent community (and communities).

See also this community's sister subs Feminism, LGBTQ+, Disability, and POC


This community's icon was made by Aaron Schneider, under the CC-BY-NC-SA 4.0 license.

founded 1 year ago
MODERATORS
 

Do you ever miss your refill appointments, like, almost every time? I've been conserving my Adderall since the shortage started - I've only gotten one refill in the past six months, and I've also missed every refill appointment in that time. I'm throwing money away for fees to reschedule appointments ... for a medication that helps me remember appointments ... that I can't even get refilled because of the supply change shortage. It's so frustrating and ironic, all I can do is try to laugh.

^hahaha^

top 8 comments
sorted by: hot top controversial new old
[–] caffinz@lemmy.cafe 6 points 1 year ago (1 children)

I've had this very same thought a few times, but regarding appointments to get a new diagnosis in a new state. It is a bit of a catch-22 lol

[–] DJDarren@beehaw.org 1 points 1 year ago (1 children)

Does you diagnosis not travel with you from state to state?

Not sure if you're in the US or not but all reporting is handled on an individual basis. You call your doctor and have them transfer files to a new doctor.

[–] DJDarren@beehaw.org 2 points 1 year ago

In a grim way, I'm lucky to be British at this time. I can order my meds via the NHS app so have a reminder to do so on the Monday before I get paid. That way they're usually available to be collected on pay day. There's no physical interaction with any medical professionals, save for collecting the pills from the pharmacy as and when I'm passing by.

In terms of appointments for aftercare, etc: I moved to an area covered by a different ADHD service two years ago, and have yet to be officially added to the registers of the service that covers where I now live. So I'm unlikely to miss an appointment because I literally have no one to make appointments with. If I need a review, I have to make an appointment with a Dr, who takes notes on what I need and passes them on to the service, who reply when they can to give the Dr permission to change what I'm on, or increase my dosage.

[–] Klinkertinlegs@beehaw.org 2 points 1 year ago

My ironic thing concerning appointments was that I almost missed one BECAUSE of my meds. My anxiety about appointments give my paralysis before the event, so I end up doing nothing and arriving really early. I took my meds before my appointment once and I got so fixated on doing something that I was almost late to the appt.

[–] nfld0001@beehaw.org 1 points 1 year ago

All of my prescriptions except for Adderall are prescriptions I can order online and have delivered to me through my provider. I don't recall if that's nationwide across the US or just my provider, but I know off the cuff that the DEA classifies it as a schedule drug, so I'm betting it has everything to do with that.

Which is incredibly funny to me in a dark sorta way, I guess. Of the prescriptions I take, the one that I have to go through the most scheduling and attention to get is for a divergence that can make the very same things challenging 🥴.

[–] infinitevalence@discuss.online 1 points 1 year ago* (last edited 1 year ago)

Switched to Vyvanse recently in part because of the Adderall shortage along with the XR's only offering me about 3-4hrs of "peak" focus. My issue on the Vyvanse is that if I forget to take it first thing in the morning I have to skip for the day because if I take it past about 10am it will keep me up until midnight!

The other-thing I struggle with is remembering which appointments are in person and which are telehealth. More than once I have shown up in the wrong medium.

https://youtu.be/aKUdadCsuRE This video definitely hits on the subject and hit close to home.

That happen with me for therapy, and yeah most of me is a mess with any kind of appointment